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While this might have been true, not even 30 years ago, medical discovery and continued study of new, more effective
treatment has greatly prolonged the life span, as well as general well being and quality of life for the average person living
with Spina Bifida.
This is definitely not true. Many people living with Spina Bifida are able to be productive and contributing members
of their communities. Some, such as a good friend of mine Roxanne Ulanicki, are great advocates for improving understanding,
and knowledge and opportunities for people with, not just SB, but other special needs as well.
If you have the recommended amount of folic acid every day you're pregnant, you're baby is guaranteed not to
have Spina Bifida.
WRONG!!!!! Many couples who have children with Spina Bifida had planned pregnancies, and had the daily recommended
amount of folic acid daily, but still had children with Spina Bifida. Folic acid just decreases the possibility for
having a child with Spina Bifida, it does NOT prevent!
Spina Bifida is a disease, can I catch it?
I have completely lost count of how many times I've heard this. Spina Bifida is a birth defect, and you are either born
with it, or you're not. You can not catch it.
The only way it can be "caught" is if someone were to become pregnant, and had a relative who has SB. It's being studied,
and shown to be some what hereditary, but to what extent or frequency, no one is certain yet.
Do you need help little girl?
I get this said to me all the time, and I for one will turn on you very abruptly. For the most part with SB it
affects mobility, and balance, and for some it can affect your bladder and bowels. This does NOT mean it affects our brains.
Most people I know with Spina Bifida, myself included, would kindly like it known and understood we are very capable and independent
and when we need it, then we ask for help. Other wise, do not assume.
"Can you hear me!?"
Again, SB affects mobility and balance..... I have yet to come across anyone with SB who has any real issues with vision
or hearing, except me but my hearing issues are from ear infections and my shunt. (that's my theory anyway, and I'm sticking
to it).
Please talk to "us" just like you would anyone else. If we need you to speak up, we'll ask.
If you have Spina Bifida, you have to have Hydrocephalus too.
Not true in the least. I know quite a few people with Spina Bifida, that do not have Hydrocephalus and therefore do not
require a shunt.
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