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My Life with Spina Bifida

My Experiences

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So, at twenty three years what has my life been like living with Spina Bifida? I will tell ya, it has been far from easy!! But having this birth defect hasn't been a complete nightmare either...


When most babies are learning to crawl, and walk I was still struggling with the use of my legs, but I sure had one huge motor mouth! According to my mother, I was anything but a quiet child. The one thing about me that was always with me, even then, was my love for music and mom tells me I used to sing and sing and sing, until her or my dad would have to tell me it was bedtime.



School was always a huge battlefield, with being teased and ridiculed for my bad leg but even then it wasnt all bad, because even though I seriously struggled with math (and still do!), I was almost always at a higher reading level then my school mates, and my spelling was consistently the best in the class.


I of course had to miss out quite a bit of school for Spina Bifida clinic (where all my specialists took turns examining my current medical well being,etc). Renal scans, and all that but in the end I did try to lead as normal a life as possible.


So yes I have had multiple Cat Scans, MRIs, Xrays, and other various medical tests and scans.... but to this day, I still try to take it all with a grain of salt, and just get it done and over with so I can keep doing what I love, which is live the life I have, goofing off with friends, and of course focusing on my music and other interests such as photography and poetry.